Catching up

It has come to my attention that there needs to be an update.  When I wrote the last post we were hopeful that we would be going home on Tuesday.  I didn't want to come right out and say that we were in case things changed, but we knew that was the goal.

Tuesday morning I made sure to convey that goal to the nurse.  It's a good thing that I did, because she thought we would be leaving on Wednesday.  But everything started to get going, and we got to go home!

Needless to say, Tuesday was a busy day at the hospital.  So many people came in and out of the room before we could be discharged- nutritionist to give us the recipe for the high calorie breast milk, someone to let us know about visiting nurses and early intervention, we had to finally pick a pediatrician (one of the nurse practicioners actually came in and referred us to the practice that we were thinking about using, so it was nice to be able to hear her opinion and get some user info on how the practice works), get the car bed installed, learn how to draw Bennett's medications, doctor for a final physical, we gave him a bath with a clinical assistant to explain to us what to do, two visits from lactation (I think I'm going to miss Kim stopping by to help- she was great!),  phlebotomy to do a blood draw to check his creatinine levels again (much better than Monday's levels)... I'm sure there were more people, but this is all I remember.  And that's not counting the regular activity from nurses, CAs, and the nurse practitioner.

We also got another roommate on Tuesday morning.  Their baby was just a little younger than Bennett and they had just gotten transferred from the Cardiac ICU.  They seemed like nice people.  Shortly after they got in I told them that we were going to be discharged and that they should ask to be moved to the other space in the room as the window side is much nicer than the one by the door- it's slightly larger and also more private.  Having been in both locations, we liked the window side much more!  We were talking with them later and they mentioned that they had already asked twice if they could be moved.  :)

So we finally were ready to go; Bennett was unhooked from the monitors, the leads were removed from him, and all we were  waiting on was some paperwork.  And in comes the CA wanting to check his vitals.  Are you kidding me?  Luckily that went pretty quickly.  We piled all of our stuff onto a cart (wow we had a lot of stuff!) and headed off to the elevator.  Chris got on the elevator, I'm holding Bennett, and all of a sudden I remembered we'd forgotten to get all of my expressed breast milk from the freezer.  It was too late for Chris to get off, so he went down to the lobby and I went with a CA to the room where they keep the milk.  There was quite a bit.

We went downstairs, met Chris, and he went off to get the car while I waited with our stuff.  Proof that we had too much stuff?  The back of my car was full and we had some stuff in the passenger seat.  I was riding in the back seat to keep an eye on Bennett.  Of course by this time it's rush hour.  We didn't care.  We were on our way home!!!

However, before we got home we had to make a stop at the pharmacy to pick up Bennett's medications.  Of course it's not the most convenient pharmacy as one of his meds had to be compounded, so we had to go to Hopkinton.  We finally got home, but then Chris had to run out to get diapers and formula.  We would have gotten them at the pharmacy, but they didn't have the right size diapers nor the right kind of formula.  It was very weird being at home alone with Bennett.  I definitely had a feeling of, "now what?"  I'd definitely gotten used to how things were at the hospital.  Not to mention we weren't quite ready at home so I didn't really have a place ready to put him.

Other than feeling really odd, our first night at home went well.  Except for the screaming fit that Bennett had from about midnight to 2am.  He had to be held.  As soon as we got him to sleep and put him back in the bassinet, he'd wake of screaming again.  Was it because it was too dark?  Too quiet?  He certainly hadn't been this way at the hospital.